International Sjögren’s Network

Simposium ini, yang mana membawa para peneliti dan dokter dari seluruh dunia, juga merupakan kesempatan bagi kelompok pasien untuk bertemu dan berdiskusi mengenai bagaimana cara terbaik untuk bersama-sama bekerja sama untuk meningkatkan kepedulian dan layanan bagi pasien Sjogren’s di seluruh dunia.

Kelompok Organisasi ini, masing-masing mewakili berbagai negara, memutuskan untuk bekerjasama dengan mengembangkan ISN. Dibawah ini Anda akan menemukan daftar organisasi-organisasi yang merupakan bagian dari ISN.  Kami berharap Anda akan menemukan informasi yang bermanfaat dan mungkin Anda tertarik untuk membantu dan mendukung.

ARGENTINA
ARASS Asociasiòn Rosarina De Autoayuda Para
Pacientes del Sìndrome De Sjogren
Facultad de Ciencias Mèdicas Santa Fe 3.100
Cuas 2 Box 1
Ciudad de Rosario Provincias de Santa Fe
Argentina
+54 (0)341152594121
sjogrenrosario@gmail.com
http://ssjogrenrosario.blogspot.com.ar

AUSTRALIA
The Australian Sjögren’s Syndrome Association, Inc. (TASSA)
2/2 McPherson Court
Murwillumbah, N.S.W. 2484
Phone: +61 (0) 26 672 4463
Website: www.sjogrens.org.au

AUSTRIA
Selbsthilfe-Gruppe Sjoegren-Syndrom
Vera Pekarek c/o La Vera Image Partyservice und
Catering GmbH A-1130 Wien Orangerie Schonbrunn
Schonbrunner SchloBstraBe 47
Phone: +43 664 325 5797
Fax: +43 181 250 4188
Website: www.sjoegren-syndrom.at

CANADA
Sjögren’s Society of Canada (SjSC)
304-31 Mechanic Street
Paris, Ontario, Canada N3L 1K1
Phone: +1 519-302-0051
Fax: +1 519-302-0471

Email Contact: leslielaing.sjogrens@gmail.com

Website: www.sjogrenscanada.org

CANADA QUEBEC
Association du Syndrome de Sjögren Inc
3155 Rue Hochelaga, Suite 001
Montreal, Quebec, Canada H1W 1G4
Phone: +1 514 934 3666
Fax: +1 514 934 1241
Website: www.sjogrens.ca

CHINA
Association of Sjögren’s Patients of China (ASPC)
11 Xizhimen South St. Beijing 100044 China
Phone: +86 18611707347
Fax: +86 1088324178
http://www.pusrc.org

FINLAND
Suomen Sjögrenin syndrooma -yhdistys ry
Kauppakatu 1 A,
60100 Seinajoki, Finland
Phone: +358 6 4232014
Website: http://www.sjogreninsyndrooma.fi/

FRANCE
Association Francaise du Gougerot-Sjögren et des Syndromes Secs (AFGS)
9 rue du Chateau
67540 Ostwald
France
Email Contact: contact@afgs-syndromes-secs.org
Website: www.afgs-syndromes-secs.org

GERMANY
Selbsthilfe-Netzwerk Sjögren-Syndrom
Elfriede Borchers, Schäferbergweg 11, D-71069
Sindelfingen – GERMANY
Phone: +49 (0) 703 138 6202
Fax: +49 (0) 703 138 2595
Website: www.sjoegren-erkrankung.de

INDIA
Sjögren’s India (SI)
701, Vatsaraj,
Opposite Shraddha School
Jodhpur Gam Road, Ahmedabad – 380015
Gujarat, India
Phone: +91 792 692 2254 and +91 942 913 3344
Website: www.sjogrensindia.org

INDONESIA
Yayasan Sjogren’s Syndrome Indonesia (YaSSI)
Contact: Nia
Tel: +6287880996658
Website : https://yayasan-ssi.org/

IRELAND
Irish Sjögren’s Support Group
Contact: Maebh Gallagher
Tel: 004412841644
e-mail: sjogrens.ie@gmail.com

ITALY
Associazione Nazionale Italiana Malati Sindrome di Sjögren – A.N.I.Ma.S.S.
Via S. Chiara, 6
37129 Verona – ITALIA
Phone: +39 333 838 6993 or +39 045 958 0027
Fax: +39 045 958 0027
Websites: www.animass.org/sjogren

JAPAN
Japanese Sjögren’s Association for Patients (JSAP)
Division of Hematology and Rheumatology Department of Internal Medicine
Nihon University School of Medicine
30-1 Oyaguchikamimachi
Itabashiku Tokyo 173-8610, Japan
Phone: +81 (0)3 3972 8111 Ext 2402 (Dr Masami Takei)
Fax: +81 (0)3 3972 2893
Website: www.maeda-shoten.com/sjogren

MOROCCO
Association Marocaine des Maladies Auto-immunes et
Systémiques  (AMMAIS)
421, Boulevard Abdelmoumen, Résidence Riad
Abdelmoumen, Bureau n°10 Casablanca, Morocco
Phone: +212 522 862 363
Website: www.ammais.ma

THE NETHERLANDS
Nationale Vereniging Sjögrenpatienten (NVSP)
P.O. BOX 6
3600 AA MAARSSEN
Phone: +31 (0)346 556376
Fax: +31 (0)346 554272
Website: www.nvsp.nl
www.facebook.com/www.nvsp.nl

International Painful Bladder Foundation (IPBF)
Mahlerlaan 4, 1411 HW Naarden, The Netherlands

Phone: +31 (0)35-8879516

Website: www.painful-bladder.org

NEW ZEALAND
Sjögren’s Syndrome Association of New Zealand
PO Box 314105,
Orewa, Auckland 0946
Phone: +64 (0)9 478 7041
Website: www.sjogrensnewzealand.co.nz

NORWAY
Diagnosegruppe Sjøgrens Syndrom
Norsk Revmatikerforbund Pb. 2653 Solli, 0203 Oslo
Norway
Website: www.revmatiker.no/diagnose/sjogrens-syndrom

POLAND
Association of People with Rheumatism and their
Friends (Stowarzyszenie Reumatykow i ich
Sympatykow)
Spartanska 1, 02-637 Warsaw, Poland
Phone: +48 664 630 125
Website: http://reuma.idn.org.pl

PORTUGAL
Núcleo de Apoio ao Doente com Síndrome de Sjögren
da Liga Portuguesa contra as Doenças Reumáticas (LPCDR)
Av. Ceuta-Norte Lt-13 Loja-2
1350-410 Lisboa
Portugal
Phone: +351 213 648 776
Website: http://lpcdr.org.pt/nucleos/nucleo-sindrome-de-sjoegren
Email Contact: lpcdr@lpcdr.org.pt

RUSSIA
National Public Organization of disable people
“Russian Rheumatic Association “Nadegda”
Russia, Moscow, Kashirskoe shosse, h.34 a
Phone: +7(916)349-4204
Website http://revmo-nadegda.ru/

SOUTH KOREA
Korea Sjögren’s Syndrome Support Group (KSSG)
Ju-kong APT 109-1104, Byeongieom-1-dong, Hwaseong-
si, Gyeounggi-do,KOREA
Contact: Choi Kyung Seok
Phone: +82 31 225 2529
Website: www.sjogrens.or.kr

SPAIN
Asociación Española Síndrome de Sjögren (AESS)
C/ Cea Bermúdez 14A, Piso 6 Of. 2
28003 Madrid, Spain
Phone: +34 91 535 8653
Fax: +34 91 535 8654
Website: www.aesjogren.org

SWEDEN
Riksföreningen Sjögren’s Syndrom
Box 147, S-233 23 Svedala, Sweden
Phone: +46 4040 0022
Website: www.sjogrensyndrom.se

SWITZERLAND (FRENCH)
Association Romande du syndrome de Sjögren (ARSYS)
Rue du Simplon 30
1800 Vevey, CH
Phone: +41 21 921 2931
Website: www.sjogren.ch

SWITZERLAND (GERMAN)
Verein der Deutschschweizer Sjögren Selbsthilfegruppen (VDSS)
Länzweg 18, CH-8942
Oberrieden, Switzerland
Phone: 0041 79 483 31 49
Website: www.sjoegren-forum.ch

UNITED KINGDOM
British Sjögren’s Syndrome Association (BSSA)
PO Box 15040
Birmingham B31 9DP
Phone: +44 (0) 121 478 0222
Website: www.bssa.uk.net

UNITED STATES
Sjögren’s Syndrome Foundation
10701 Parkridge Blvd., Suite 170
Reston, VA 20191
Phone: +1 301 530 4420
Fax: +1 301 530 4415
Website: www.sjogrens.org